Over 30 years of continuous Service
The Myasthenia Gravis Alliance, also known as Myasthenia Gravis Foundation of Greater New York, Inc., a 501(3)(c) was founded as an unincorporated association in in the late 60s. Later functioning as a non profit membership corporation, incorporated in The State of New York. Thirty years later, through generous bequests and the energy of countless volunteers, the Board of Directors moved to separately incorporate. Why?
- Increase visibility in the community
- Broaden patient services
- Increase prestige in the medical community
- Shift to professionalism. We hired a Executive Director and modeled ourselves after other successful small non-for-profits.
We set lofty goals. Our 800 number is used by Myasthenics across the country and Canada allowing us to keep in touch with treatments and services throughout the nation and beyond.
From 1996 to the present, we are comprised solely of volunteers, some who produced informational television shows on Westchester Cable, Queens Cable, and Staten Island Cable.
2009. designed a new web site with the help of Baruch intern graduate, Sarah Park
2008 founded the Alliance Internship, working closely with Baruch College
- 2007 to present, the alliance funded the Alliance Fellowship at University of California, Davis for Myasthenia Gravis Research headed by Dr. Robert Fairclough, Faculty Researcher/Principal Investigator. Thus far, $25,000 was contributed.
- From 1995 to 2003, we contributed funds totaling $417,356 to Dr. Gabriel Genkins to support Mt. Sinai Myastheina Gravis research.
- In 1999, We launched our Website: MGdirect.Org to provide 24 hour access to M.G. information around the world.
- In 1998, we set up a new Division: The Myasthenia Alliance for Health & Wellness. It was created to focus resources on Medical and Professional Education, becoming the mechanism for delivery of the educational part of our mission.
- In 1997, we supported the International Symposium hosted by our California Affiliate, hundreds of participants and hundreds of pages of published research. We arranged for the publication and distribution of the papers presented at the 1996 meeting in a supplement to the Journal Neurology which was sent to thousands of Neurologists.
- In 1996, we organized and hosted the first Spring Educational Conference. Over 150 physicians and 35 RNs from the tri-state area learned about the latest treatments for M.G. The conference also presented 3 days of workshops assisting those living with MG and their families.
- In 1996, the Foundation helped organize the Queens County Area group. This group hosts monthly meetings and organizes an outdoor picnic each year for the entire Foundation membership.
- In 1995, in response to a growing number of children getting M.G. the Foundation started the Pediatric Adolescent Division (PAD). PAD. helped focus resources on the medical, and emotional needs of children.
- In 1992, we participated in the International Symposium hosted by our Greater D.C. Affiliate. This was a multi day conference for hundreds of physicians from around the world and resulted in the publication of over 800 pages of research. In 1992 we secured our 501(3)c status.
I1990, the first Area Group was formed to better serve the needs of its geographic area, by organizing informational meetings and support groups. The Mid-Hudson Area Group services over five counties in the Mid-Hudson area. We also incorporated in 1990.
In 1990, the first Area Group was formed to better serve the needs of its geographic area, by organizing informational meetings and support groups. The Mid-Hudson Area Group services over five counties in the Mid-Hudson area. We also incorporated in 1990.
In 1992, we participated in the International Symposium hosted by our Greater D.C. Affiliate. This was a multi day conference for hundreds of physicians from around the world and resulted in the publication of over 800 pages of research. In 1992 we secured our 501(3)c status.
In 1995, in response to a growing number of children getting M.G. the Foundation started the Pediatric Adolescent Division (PAD). PAD. helped focus resources on the medical, and emotional needs of children.
In 1996, the Foundation helped organize the Queens County Area group. This group hosts monthly meetings and organizes an outdoor picnic each year for the entire Foundation membership.
In 1996, we organized and hosted the first Spring Educational Conference. Over 150 physicians and 35 RNs from the tri-state area learned about the latest treatments for M.G. The conference also presented 3 days of workshops assisting those living with MG and their families.
In 1997, we supported the International Symposium hosted by our California Affiliate, hundreds of participants and hundreds of pages of published research. We arranged for the publication and distribution of the papers presented at the 1996 meeting in a supplement to the Journal Neurology which was sent to thousands of Neurologists.
In 1998, we set up a new Division: The Myasthenia Alliance for Health & Wellness. It was created to focus resources on Medical and Professional Education, becoming the mechanism for delivery of the educational part of our mission.
In 1999, We launched our Website: MGdirect.Org to provide 24 hour access to M.G. information around the world.
From 1995 to 2003, we contributed funds totaling $417,356 to Dr. Gabriel Genking to support Myastheina Gravis research.
From 1996, to the present our Public Relations Committee, comprised solely of volunteers, produced informational television shows on Westchester Cable, Queens Cable and Staten Island Cable.
In 2007, UC Davis $25,000